MEET OUR FAMILIES
In our community of TBCK Warriors, the threads that connect us are the stories of parents and caregivers. Read through the powerful narratives that shed light and perspective on the journey of caring for a TBCK warrior.
“Your story matters, and together, we can light the way for others.”
Stories by Community, for Community
Curious to discover more about our incredible TBCK families? Venture into the heart of our community by exploring our Instagram and Facebook pages, where every Wednesday is Warrior Wednesday, and we share the stories of our Warriors of the month. Dive into the lives of our families, their unique journeys, and the inspiring moments that make us stronger. Don't miss out—join the conversation and follow our series TBCK Warrior of the Month!
Patient Registry
If TBCK is a part of your story, we invite you to become a valued member of our TBCK Patient Registry—a space that not only connects us but also holds the potential to shape the future of TBCK Syndrome.
TBCK PARENT + CAREGIVER PERSPECTIVES
Your story is a beacon of hope for others walking a similar path. We're here to listen, support, and amplify your voice.
HERE ARE SOME CLOSER LOOKS INTO THE LIVES OF OUR TBCK FAMILIES
TBCK Warrior Angel Stories
Our community of TBCK Families is inclusive of all stories and experiences with TBCK Syndrome. We stand alongside all of our families, especially our TBCK Warrior Angels.
The TBCK Foundation is a registered 501(c)(3) charity organization. Please note that we provide this information for the benefit of TBCK syndrome community. We are not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on individualized medical advising from qualified health care professionals before seeking any information related to their particular diagnosis, cure, or treatment of a condition or disorder. The TBCK Foundation is recognized as a 501(c)3 non-profit corporation. EIN 83-3095299.
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