The TBCK Foundation works to not only connect families and caregivers of those who are affected by the impacts of the rare and under-researched TBCK Syndrome, but also to fund research and expand patient support as the first global organization for TBCK Syndrome. Although The TBCK Foundation first began as a few families sharing their experiences with one another, it has grown into a patient-led advocacy organization hosting annual TBCK Syndrome Conferences, being selected as a grantee of the Chan Zuckerberg Initiative, Rare as One Network, and providing funding for four different researchers across the United States since 2019.
Our Commitment and Vision
At the TBCK Foundation, we stand devoted to supporting families and driving the forefront of research for impactful treatments.
Our strategic initiatives encompass
Pioneering
Research Advancement
We are unwavering in our commitment to propel the research landscape of TBCK Syndrome forward. Through strategic partnerships and funding, we catalyze groundbreaking studies that unveil crucial insights into TBCK Syndrome, forging a path to effective treatments and a brighter future.
Empowering
Families
Knowledge is strength, and empowerment begins with knowledge. We take pride in empowering and uniting families impacted by TBCK Syndrome. Our comprehensive resources and advocacy opportunities provide families with the tools and support they need to navigate challenges, fostering resilience and a shared sense of community.
Shaping Treatment Paradigms Through Collaboration
Our collaboration with esteemed researchers is more than just a partnership—it's a mission to reshape treatment possibilities. By actively contributing to the development of cutting-edge protocols and best practices, we are at the forefront of innovative treatment strategies, ensuring that every individual with TBCK Syndrome receives the highest standard of care.
Through these visionary goals, the TBCK Foundation is driving change, fostering hope, and creating a future where TBCK Syndrome is not only understood but also treated with compassion and expertise.
TransparencY
Support TBCK research and work at the foundation
Join Us in Shaping a Brighter Future:
Volunteer with TBCK Foundation
Are you ready to make a lasting impact in the lives of families and individuals touched by TBCK Syndrome? The TBCK Foundation is calling on passionate individuals, like you, to join our community of changemakers. As a volunteer, you'll become a vital force in driving research, offering support, and fostering connections within our growing family. Unite with us to amplify stories, to empower families, and to pave the way for groundbreaking advancements. Volunteer with the TBCK Foundation and become part of a movement that thrives on compassion, unity, and unwavering commitment.
Ready to ignite change?
Reach out to us at info@tbckfoundation.org and let's make a lasting impact together.
The TBCK Foundation is a registered 501(c)(3) charity organization. Please note that we provide this information for the benefit of TBCK syndrome community. We are not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on individualized medical advising from qualified health care professionals before seeking any information related to their particular diagnosis, cure, or treatment of a condition or disorder. The TBCK Foundation is recognized as a 501(c)3 non-profit corporation. EIN 83-3095299.
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